Building a haemophilia-specific navigator in Epic® Electronic Health Records: Single-centre preliminary experience
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Introduction: With the increasing complexity...
Psychophysical assessment of pain in adults with moderate and severe haemophilia: A cross-sectional study
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Background: Joint pain...
ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophilia
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To assess activity limitations in people with haemophilia (PwH), the self-reported Haemophilia Activity List (HAL) is widely employed,...
Musculoskeletal ultrasound in hemophilia: Results and recommendations from a global survey and consensus meeting
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For persons with hemophilia, optimization of joint outcomes is an important unmet need. The aim of this initiative...
Clinical gait features are associated with MRI findings in patients with haemophilic ankle arthropathy.
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Introduction: Haemophilic ankle...
Cross-cultural adaptation and validation of the Canadian Haemophilia Outcomes-Kids’ Life Assessment Tool (CHO-KLAT) in Côte d’Ivoire (the Ivory Coast)
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Health-related quality of life evaluation is recognized as an important outcome in the assessment of boys with haemophilia.
Cross-cultural adaptation and validation of Haem-A-QoL in Côte d’Ivoire
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Introduction: Health-related quality (HRQoL) evaluations are considered essential...
